Welcome to Matthew Wanger's Page
Thank you for supporting Matthew and the work of Dr. Anne Comi at Kennedy Krieger Institute. Since 2014, our family and friends have donated more than $50,000 for Sturge-Weber syndrome research. Thank you!
We are so grateful for all the love and support we continue to receive every day from our family and friends. The journey has been a difficult one, but with the help and support you have provided, we feel blessed to see Matthew overcome many hurdles. We are hopeful for his future and know that he will continue to make progress. God Bless You!
About Sturge-Weber Syndrome:
Sturge-Weber Syndrome (SWS) is the association of a facial port-wine stain with abnormal vessels on the surface of the brain (leptomeningeal angioma), glaucoma or both. Some people have an isolated intracranial variant, meaning abnormal brain blood vessels with no skin or eye symptoms. SWS does NOT generally run in families. It can affect one side (in about 85 percent) or both sides of the body (in about 15 percent). Treatments are available for many of the complications of the disease. More research is needed to develop better treatments for SWS, how to treat it, and how to prevent the medical and developmental problems resulting from it.
Dr. Comi and her team at Kennedy Krieger discovered the cause of Sturge-Weber syndrome--a genetic mutation that occurs before birth. Now that we understand gene and pathway involved, we can begin to investigate drugs that target those pathways. For more information about Sturge-Weber syndrome and the gene discovery, please visit sturgeweber.kennedykrieger.org.
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