Honor/Memorial

Team Awesome

We need your support

In 2016, Dr. Ali Fatemi launched a groundbreaking research project at Kennedy Krieger Institute which will provide a roadmap towards nanotherapy for Leukoencephalopathy with Brain Stem and Spinal Cord Involvement and Lactate Elevation (LBSL).  The outcomes of the research will become a very powerful tool for testing new effective medications.   

There are four milestones within the project which require funding. The research within each of the milestones will take place over the next several years. Year one of "Milestone 1" required $60,000, which was met in October 2015 and allowed the project to begin. The second phase of "Milestone 1" requires $231,000 and funds raised to date have allowed our researchers to continue with increasingly important studies and testing over the past 18 months to position us for "Milestone 2", which will require just over $1,000,000. We are excited and encouraged by the progress that has been made and know this will be a "marathon" effort - not a sprint. With your help, together we can save the children with LBSL across the globe - to help them walk and keep them strong for years to come. 

Thank you to our family and friends who have donated to A Cure for Ellie pages prior to June 30, 2019.   

 
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