Team Awesome
In 2016, Dr. Ali Fatemi launched a groundbreaking research project at Kennedy Krieger Institute which will provide a roadmap towards nanotherapy for Leukoencephalopathy with Brain Stem and Spinal Cord Involvement and Lactate Elevation (LBSL). The outcomes of the research will become a very powerful tool for testing new effective medications.
There are four milestones within the project which require funding. The research within each of the milestones will take place over the next several years. Year one of "Milestone 1" required $60,000, which was met in October 2015 and allowed the project to begin. The second phase of "Milestone 1" requires $231,000 and funds raised to date have allowed our researchers to continue with increasingly important studies and testing over the past 18 months to position us for "Milestone 2", which will require just over $1,000,000. We are excited and encouraged by the progress that has been made and know this will be a "marathon" effort - not a sprint. With your help, together we can save the children with LBSL across the globe - to help them walk and keep them strong for years to come.
Team Roster
Raised
$3,176,720
$150
$900,117
$5,258
$1,305
$20,187
Team Gifts
$0
Team Progress
of Goal
$4,103,738
Raised
$3,000,000.00
Team Honor Roll
Cure LBSL
$636,000
Ralph and Sue Stern
$518,000
Duncan and Liz Ferguson
$487,500
The McGinn Family
$450,000
The Stern Family
$318,000
A Cure For Ellie
$300,000
A Cure for Ellie
$285,000
A Cure for Ellie
$200,000
Cure LBSL
$200,000
Ferguson Family Foundation
$100,000
Ferguson Family Foundation
$68,000
A Cure for Ellie Donations
$50,000
.
$48,775
Mr. Chris Heaslip
$47,658
Ms. Fran Wyborn
$46,500
Chris and Connie Huljich
$43,750
Peter Huljich
$43,750
A Cure for Ellie Proceeds
$30,000
Michael McGinn
$30,000
McGinn Family
$30,000
Cooper Family
$20,000
Mr. Michael McGinn
$18,000
Mr. Michael Huljich
$13,607
The Ferguson Foundation
$10,546
Mr. Divan Raimundo Aquino Sr.
$10,000
Trevor & Jan Farmer
$10,000
A Cure For Ellie
$10,000
Trevor and Jan Farmer
$9,736
Bay Fergs
$6,000
Connie Cooper and Siena Arnott
$5,036
Brooke Fenton
$5,000
Kaic's Family
$5,000
P, S & F x
$5,000
Mr. Divan Raimundo Aquino Sr.
$3,500
Miss Sarah Elder
$3,401
Jeremy and Julia Hay
$3,360
Mr Justin Wyborn
$3,360
Mr. Pasi Kallioniemi
$3,000
Mr. Chris Huljich
$1,730
Yard Sale Proceeds
$1,500
Liz Selak
$1,310
Ms. Divan Raimundo Aquino Sr.
$1,000
Mr. William A Dal Col
$1,000
Anonymous
$1,000
Bracelet Proceeds
$925
Chick-fil-A and Scarf Sale Donations
$650
James Dyke
$500
Anonymous
Mrs. Alan Conder family
$500
Ms. Constance Wilkes
$500
Amelia Swanson
$500
Brett Loper Matching Gift
$500
Anonymous
Mr. Brett Loper
$500
Ms. Roqson Marcio Bastos de Souza III
$410
Auckland Design Girls
$340
Pampered Chef Matching Gift
$330
Ms. Donna Gilliam
$330
Rita K Leffers
$300
Ms. Trish Atkins
$268
Patricia Wilson
$250
Nicole Rodgers
$250
Marc Palazzo
$250
Mr. Thomas Benjamin
$250
Kerrie Rushton
$250
Heidi Stephanie Anderson
$250
Ms. Krisztina Gyori
$250
Kristin and Corbin Blackford
$250
Penny Hay
$250
William Mitchell
$250
Megan Mitchell
$250
William Timoney
$250
Russ Thomasson
$250
Paw Paw & Maw Maw Schuhwerk
$210
Nancy McGinn
$200
Maggie Kelly
$200
The Gregorio family Gregorio family
$200
Andrea Kovacs
$200
Anonymous
$200
Rifa Camiseta Corinthias in Honor of Kaic Lesli
$152
Graces LBSL Savings
$150
Rosie Waterhouse
$150
Ileana Mendez
$100
Mr. pedro perez Sr.
$100
Mrs. Maureen O'Hara
$100
Mr. Jason Szotak
$100
Mrs. Teodora Kovacs
$100
Jamie Gahun
$100
Ginger Brown
$100
Damian, Alexis & Reilly
Nikolina, Luka and Mila
$100
Jeff Cohen
$100
Ms. Megan Mitchell
$100
Mrs. Cathy McGill
$100
Mr. Donald Stewart
$100
Mr. David S. Addington
$100
Joseph Lenhard
$100
Food Service Consultants
$100
Page & Ted Kral
$100
Ms. Ruth E Larsen
$100
Mrs. Sharon Dougherty Trifilo
$100
Jena Brooks
$100
Chelsea Bonnes
$100
For Parker Stern from Joan Coleman
$100
Anonymous
Singletarys for Parker
$100
Tom Reynolds
$100
Caryn Winkler
$100
jessica sandlin
$100
Mr. James Malecki
$100
Virginia Warden
$100
Susanna Jones
$100
Mrs. Toni M Howell
$100
Cecil Gilliam from the Waggoner's
$80
Memory of Marjory Waggoner paw paw and maw maw
$75
Shazzie Cooper
$75
Ms. Mary Jean Bronson
$75
Nancy Schuhwerk
$60
Ms. Viktoria Papp
$60
Brennon Flood
$50
Lori Bogacki
Patti Guttmann
$50
Katherine Malone
$50
Cousins lemonade stand
$50
Mr. MEHRDAD ERFANI
$50
Mr. Zoltán Somogyi
$50
Ms. JoAnn B Alfriend
$50
Jennie Celik
$50
Irene Naguib
$50
Gabrielle Everett
$50
Mrs. Ginger Brown
$50
Mrs. Amy Gross
$50
The Kittingers
$50
Mr. Quentin D Hyatt
$50
Vilmos Klebik
$50
Flora Tajalli
$50
Peggy Tugwell
$50
Jane Kratovil
$50
Ms. Mary McLean
$50
Mr. David Marlin
$50
Mr. Anonymous Anonymous
$50
Nora D
$50
Ms. Xy Xy
$50
Francine
$50
Dr. Kelly Wolfe
$50
Thomas Hamilton
$50
David and Jaclin Marlin
$50
Winson Cumberland
$50
Ms. Diane Lourdes Dick
$50
Ms. CSilla Lukoczky
$50
Avalon & Gracie's Lemonade Stall
$36
Mr. Feri Bycs Sr.
$35
Ms. Anett Fazekas
$30
Marie Dill
$30
Leslie Marsiglia
$30
Julie Briddell
$30
Park Cannon
$25
Gammy & Cathy
$25
Ms. Teresa A. Osman
$25
Mr. Donald Capitali Sr.
$25
Paw Paw and Maw Maw
$25
Patrik Vinkler
$25
Schuhwer's In Memory of Cecil Gilliam
$25
Jacqueline Bolt
$25
Lindley Kratovil
$25
Ms. Vivien Vári
$25
Pia Corona
$25
Ecker
$25
Mary Jean Bronson; In honor of Dalton Gilliam
$25
Mrs. Gaylia Lindholm
$25
Ms. Zsofi Beni
$25
Ms. Andrea Balogh
$25
Ms. Judit Varga
$25
Mr. James Malecki
$25
Gitta Hadabás
$25
Miss xy xy
$25
Mary Jean Bronson
$25
Jennifer Stiles
$25
Mrs. simone da Silva rodrigues
$25
Mr. Tamas Farago
$25
Anonymous
$25
Ms. Carrie Lewis
$25
Eric Braxton
$25
Miss Anett Horvath
$25
Ms. Anna Banki
$25
Bruce C. Freer
$25
Mr. Valla Vonga Olliver III
$25
Miss Jenn Howard
$25
Mr. Bence Gonter
$25
Unknown Gitta Hadabás
$20
Silvana Coleman
$20
FYW100917
$15
Ms. Kirsten Wall
$15
Jennifer Mallmann
$15
Mrs. Susan Bunch
$15
Lara Haefner
$10
Kathy sandknop
$10
Ms. Ildiko Toth
$10
Nicola de Montille
$10
Dawn
$5
Recent Donors
Cure LBSL
Ralph and Sue Stern
Duncan and Liz Ferguson
The McGinn Family
The Stern Family