ROAR for Kids 2020

Sprint for Sickle Cell

We need your support

This spring, our team will be taking part in Kennedy Krieger Institute's annual ROAR for Kids.

You can make your voice heard as we come together to ROAR for Kids at Kennedy Krieger. 

What is Sickle Cell Disease?

Sickle cell disease (SCD) is an inherited blood disorder that affects red blood cells. In SCD, red blood cells contain an abnormal type of hemoglobin that results in sickle (or crescent)-shaped cells. These sickled cells have difficulty passing through blood vessels resulting in less flow to affected areas of the body. Tissues that do not receive sufficient blood flow can be damaged resulting in pain, or if the brain is affected, cognitive or developmental difficulties.

Who are we?

The Sickle Cell Neurodevelopmental Clinic provides multidisciplinary care for children and adolescents with Sickle Cell Disease (SCD). Patients and their families meet with Neurology, Neuropsychology, and Behavioral Psychology providers, receive assessments, and are provided with recommendations.

Why join our team?

The funds raised for our program will be used to 1) create developmentally-appropriate and individualized picture story books to help children and their families understand SCD, its effects, and their personal medical history and treatment, 2) obtain additional test materials for cognitive, emotional, and academic screenings, 3) provide funds to alleviate transportation costs for families in need (e.g., gas cards), and 4) consultation time with an educational specialist to facilitate educational supports.


We appreciate your support as we participate in this wonderful event.


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About ROAR for Kids

 

ROAR for Kids is a 5k run, low mileage fun walk, and family festival dedicated to raising much-needed funds for research and programs to help kids at Kennedy Krieger Institute. 

 

When you are finished running or walking be sure to take a break and checkout the wide variety of fun activities and entertainment at our family festival! And for those of you who can't drag yourself out of bed or want to participate from afar, you can register to Snore for ROAR.

 

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